11 Down, 22 to Go

For the 2nd time in a row, treatment was on time.  So, Jude got in around 10 a.m.  They even were able to do a painless blood draw through his port to check his anti-seizure medication level.  He’s acting wild, but I don’t know if that’s because of his medication or because he’s a 5 year old boy.  We’ll know in a couple days.  We have great reason to believe that the reason for the 3 hour delay on Tuesday was because some parent (and we know who) did not adhere to the fluid/food intake restrictions and the child then had an airway emergency.   Urgh.  Hopefully the parent learned the lesson since feeding that child caused all the rest of our kids not to get to eat breakfast until dinner time.

Jude suffered another port injury tonight while he and I were playing basketball in the playroom.  It was fairly awful.  The needle was again sticking half way in and half way out of his upper chest.  I was alone with the 3 boys in the playroom and Andy was miles away at the YMCA.  I had no choice but to pull that needle out myself.  I assessed the situation and then pulled the needle out, with my eyes closed.  (This from the woman who grew up wanting to be a doctor — guess I’ve become a bit of a wuss since then.)  Jude then insisted on peeling all the tape and bandaging off himself.  After the injury, we took it easy for awhile and read some books.  Jude first picked out a lullaby book.  He thought it was hilarious when I read, “Rock-a-bye baby, in a treetop.”  Who would put a baby in tree top, he laughed.  Then he got addicted to The Lion, the Witch and the Wardrobe and kept wanting us to read just one more chapter.  So, it was a late night.