Later this month Jude will have another of his every 4-month MRIs. I’m already feeling anxious about it. About this time after the 1st surgery, the regrowth became visible on the MRI, although the providers thought it was probably just inflammation/scar tissue. So, anything bright on the scan will have me feeling panicked. Hopefully he is cured and it is clear.
He also has an EEG scheduled. Jude had one of those before. He has to do it sleep deprived (I think he and I stayed up all night with him the other time baking and eating a cake). Then they try to induce a seizure by having him stare at pinwheels and crazy lights, while connected to all these electrodes. If he passes and doesn’t have a seizure, he’ll be able to start get weaned off the anti-seizure medication. Andy and I hate that medicine now more than Jude does since it really does make him irritable. We are eager to see what our newly 6 year old Jude is really like when he’s not drugged up.