Interesting development — a partner in my group googled functional MRIs and found that Seattle Children’s Hospital seems to be the best at fMRIs for small children, with a heavy neuropsychological component, where they coach and practice with the children prior to the fMRI. I spoke this morning with the functional MRI technician at that hospital in Seattle this morning and she said she has a 50% success rate on 5 year olds. I was almost ready to book a flight to Seattle for Jude and Andy when Andy suggested that I call our neurosurgeon to see if he thought it was necessary.
His secretary called me back and said that our neurosurgeon found that the fMRI was very successful and that he got everything he needed. That is the complete opposite of what the MRI technician told Andy. What a relief to know that it actually turned out. I suppose I should just exercise my rights under HIPAA privacy regulations to access all of Jude’s medical records so that I can see what the providers tell each other since I’m clearly not in the loop. Funny!