3 treatments left after today! Today’s treatment went just fine but was quite delayed and Jude didn’t get in until noon. I got a call this morning shortly before we were to leave for his 10:15 a.m. appointment that due to “a computer difficulty” they were running an hour behind. I thanked them for the information, …
Category Archives: General
4
29 down, 4 treatments to go after this morning’s treatment. After my chat with the CFO of the proton center yesterday with my suggestion of them buying another bed so that Jude and other patients aren’t rushed out the door, I noticed they made extra efforts to let Jude sleep today. They had the lights half …
5
After today’s treatment, we are down to the final 5. We’ll be done a week from today. Today’s treatment was a little more interesting than normal. I’ve been getting a little irritated that the nurses keep waking Jude up before he’s done sleeping that a few treatments ago, I asked why they do that. The …
6
As usual we called the proton treatment center before treatment started today to see how they were running.  They said they were running on time, which of course meant they were running a half hour late. Not too bad. After treatment, Jude got a Happy Meal. 27 down, 6 to go.
Jude’s Recent Notable Quotables
“Sometimes I make friends that I only play with for like one day.” [My reaction — how sad is that? Jude just lives to play with other kids. It makes me wonder if we’re doing the wrong thing by homeschooling him since I know he’d love to be with kids. At least he has his brothers.] …
Jam-Packed Weekend
It was a jam-packed weekend. On Friday night we drove to Louisville, Kentucky. We arrived a couple hours before the hotel’s pool closed. Jude, Levi and I went swimming (or, more accurately, I went swimming while they clung to me like newborn monkeys). We had such a good time. The boys especially enjoyed jumping into …
7
7 treatments left after today. Today’s treatment went just fine. After treatment, Jude opted for instant gratification — a Transformer decepticon from the toy shelf, rather than a $10 gift card. Jude’s hair is looking really crazy. He’s missing almost all of the hair from the left side of his head, right down the middle of …
Rough Night
Last night was such a rough night. Levi just wouldn’t go to sleep. Since my pampered Andy sleeps with ear plugs in, I was in charge of trying to get Levi to stop chattering and to go to bed. Levi ended up not going to sleep until 2 a.m.  Imagine my surprise when he woke me up …
8
8 treatments left after today’s noon appointment. We were all shocked that Jude got in to his noon appointment at noon. That is a first.  So, he got to eat breakfast/lunch at 2 p.m. today after waking up from anesthesia. My strategy in helping him avoid suffering with hunger/thirst this morning was to keep him up …
9
9 treatments left after today. We’re getting so close. Everything went just fine today. Jude lost some more hair but his bald patch is holding up and his skin that is getting radiated doesn’t look damaged and isn’t sore. Tomorrow’s treatment will be rough. His treatment time is scheduled for noon, which means 1 or …