Poor Jude is so accustomed to his port access falling off mid-week that he just asked us, “Is tomorrow the day my port falls out?” We said something like, “Yes, your port access usually falls out on Thursday and they take it on Friday.” Then, as if he was trying to fulfill a prophecy, Jude …
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They woke Jude up again after treatment #15Â today, which was a big bummer since he could have used some more sleep. I had to carry him out of there since he was still too tired to walk. I noticed when I picked him up from the bed that he left a small pile of hair …
Time is flying and soon it seems we’ll be to the halfway point in Jude’s radiation treatment. He’s doing great. There are still no signs of side effects from the treatment. He’s just as fun and energetic as normal. He is not missing any hair. It will be awesome if he can get through this …
Jude had his 13th treatment this morning. I went with him and Andy, Levi and Asher stayed behind. That is our routine now for every day except Thursdays, which is the day that we meet with the radiation oncologist and Andy likes to be there for that. Going with Jude alone allows me to the …
Jude finished his final treatment for the week today. Treatment was only running 45 minutes behind, which was great, although not great that we called before we left and they said they were running on time. Jude got to pick out a toy from the toy shelf before treatment started — a Lego Hero Factory …
Continue reading “12 Down, 21 to Go and Colombus Here We Come”
10 down 23 to go. Today’s proton radiation treatment went better than ever. Jude was scheduled for 10 a.m. and we got a surprise call at a little after 9 asking if we could come in at 9:30 a.m. Thankfully, we are only a 5 minute drive / 7 minute walk away. Jude got in by …
For the 2nd time in a row, treatment was on time. So, Jude got in around 10 a.m. They even were able to do a painless blood draw through his port to check his anti-seizure medication level. He’s acting wild, but I don’t know if that’s because of his medication or because he’s a 5 …
Today has been a total disaster. Jude was scheduled for treatment at 11 a.m. As usual, treatment was not running on time and he didn’t get in until 2 p.m. I guess there were some complications with a child who was scheduled 1-1/2 hours before Jude. That pushed all the kids for the rest of …
Tonight we just hung out around the house. We threw the apples from Jude’s Happy Meal to the deer that live in the woods nearby and come up to the house each evening to eat. Yes, that’s right, Jude ate every last bite of the hamburger and french fries, but didn’t touch the apples. After …
Jude had his 8th treatment today. I brought him since I can get more work done there than I can staying behind with the 2 little ones. It was running an hour behind, as usual, so Jude didn’t get in until almost noon. I’m not sure how he does it, but he barely complains that …