While Jude, with a brain cancer history, would typically be considered the sickest kid in the room, that is not the case here. He appears to be the healthiest young kid in this house. Some of these families are really going through a rough time. One family from Ukraine has a 3 year old girl who …
Category Archives: General
The Beam was Down
Jude had a 10 a.m. appointment for radiation and didn’t get in until 12:30 p.m. since the beam was down. So, he didn’t get to eat today until 2 p.m. again after waking up from anesthesia. Brutal. He is doing well though. The radiation doesn’t seem to be having any impact on him yet. I’ve …
1 Down 32 to Go
It’s past 1:30 a.m. here in Indiana and I haven’t slept yet. I’ll get to that, after this. Today was a crazy day. Jude had to arrive for proton therapy at 11:45 a.m. By the time we loaded him in the hot car to drive to the treatment center, he realized he hadn’t gotten anything to …
All on Board
Yesterday morning, on our to Indiana, we go news from our oncologist about St. Judes’s review of Jude’s tumor tissue from 2010 and 2012. The review confirmed that radiation is warranted. It turns out that the only factor that researchers have found that correlates with recurrence of supertentorial cortical ependymomas is invasion into the surrounding …
Incredibly Anxious
I feel incredibly anxious as the commencement date of radiation is rapidly approaching. I feel like I’d rather endure 100 brain surgeries than this radiation treatment. The 3 radiation doctors have been all over the map about potential side effects and I hate that this treatment is ineffective 30% of the time against the type …
Andy’s Quote of the Day
To me when I was asking him how we are “going to get out of” radiation: “I don’t think we’re going to get out of it. But, we’re going to get through it.” For those of you who are praying for little Jude, please pray that we get good news from St. Judes regarding the …
Jude’s Quote of the Day
Why is my shadow following me everywhere? That’s scary.
Asher’s 1st Temper Tantrum
Asher, at only 10 months old, is already following in the shoes of his Daddy and big brothers in being a total techie. Asher threw his first temper tantrum today when Levi wasn’t sharing the iPad good enough with him. Pretty crazy.
Super Speed Double Weed
A little surgery to place a port in his chest hasn’t slowed Jude down one bit, even though it is supposed to have. He is supposed to be playing no sports, doing no rough housing, etc. That is really too much to ask of our little Jude. Just hours after being released from the hospital, …
Port is Placed
Jude had surgery today to place the port in his right chest. It will stay in for the next 8 weeks or so. Jude has a good friend who also has a port, so luckily I don’t think he thinks it’s that big of a deal. But, he hasn’t seen it yet. It will hopefully remain bandaged for …