I’m praying that Jude responds well to the spinal tap tomorrow and that we get confirmation that the cancer hasn’t spread to the spinal fluid. The last spinal tap he had when he was 3-1/2 didn’t go well. In fact, he thought he was going to die and said, “I think this day we’re going to heaven.â€Â When I asked …
Category Archives: General
The Asher-Patented Power Nap
Asher doesn’t sleep much, for a baby. But, he does power nap. I set him in the high chair to eat some dinner and he fell asleep. I cleaned up his face and let him sleep there for 10 minutes or so, intending on transferring him to the crib. He woke up after 10 minutes …
Spinal Tap on Monday
Monday will be another big day. Â Jude has a spinal tap scheduled for bright and early in the morning to ensure the cancer cells didn’t spread to his spine. Â I would be surprised if they spread, but it will be a relief nonetheless. Â He will be sedated for it. Â While he is sedated, I requested …
Asher Swims in a Pool of Gatorade
The 3 boys really keep me hopping and I often feel like I just chase after them or have them chase after me and clean up one mess after the other. Tonight Jude and I were baking some banana muffins and making some popsicles made out of yogurt, peaches and juices when Asher wedged his …
Radiation Pros and Cons
Anytime I have a big decision to make, I resort to the side by side pro/con list. This will be a work in progress, leading up to the decision, but I bet it is almost the final product. Although I need more information, I really feel like banking on the 2nd time being a charm …
Asher Escapes!
Asher is 9-1/2 months old and too mobile for his own good. Tonight while Jude was signing thank you cards at the table, Levi was roaming around the main level of the house, Andy was on the computer in the family room by the back deck, and I was unloading the dishwasher, Asher disappeared. Asher …
More Funny Phrases
The cutest things come out of Jude’s mouth and I always like to record them. He’s getting so upset about all the pokes. He asked recently, “Why do I get 2 pokes in a row? Why can’t I get 2 birthdays in a row?” Jude to Andy when Andy was protesting carrying both Jude and Levi …
Home from Hospital (Again)
We were discharged from the hospital for the 3rd time since Jude’s brain surgery. We learned that his anti-seizure medication level was below normal range at the time of the seizure. We may be partially to blame (which I feel guilty about) since he missed his dose of Keppra the night before the seizure since …
Scared, but thankful
This recent seizure has really spooked me. We now will see a neurologist for seizures and he will be prescribed a medicine that we can give him at home to stop the seizure. Jude will not be able to do anything without careful monitoring, the neurologist said. The seizures come on so quickly and one …
Déja Vu
Yesterday was the second scariest day of my life, following the day of Jude’s initial brain tumor diagnosis. After I got home from work yesterday, Andy went to buy some new running shorts and the boys and I were playing in the front yard. Then Jude and Levi decided to jump in the SUV and …