We were thrilled to learn recently that as a result of Jude’s normal EEG and no brain tumor recurrence, Jude can start getting weaned off his anti-seizure meds. I’m hoping we start seeing immediate changes as a result of the lower dose he’s getting. It appears to me that the meds bring down his maturity level by a couple years. In 4 weeks, he’ll be off the meds and we’ll get our real boy back.
We’ll have to be vigilant about watching him. The neurologist said he cannot swim, bathe, jump, etc. while unsupervised. Even though he had a normal EEG and no recurrence, he’s still at a higher risk for seizures from the scar tissue on his brain.