I’m really frustrated that Jude rose to the occasion, and that the functional MRI nevertheless didn’t work out. I really feel that if Abbott had the proper restraints, it would have been a successful scan and they would have gathered some valuable information to make the surgery less risky and more successful.
I’m looking into other options. Unfortunately, Amplatz Children’s doesn’t do functional MRIs and the U of M has a worse set-up for kids than does Abbott so they referred me to Abbott. I also called the Mayo Clinic. It sounds like they at least do cushions on either side of the head, but it doesn’t really act as much of a restraint.
I just don’t get what would be so hard about restraining his head during the scan. Heck, I can imagine it would be accomplished with a long shoe lace. But, there is probably some dumb government medical device approval process that the shoe lace would have to go through and Jude will be 10 before that process would wind up. Insane.