Jude is scheduled for surgery to remove his cancerous brain tumor that reappeared after the earlier resection 1-1/2 years ago. The surgery will be on June 6th, with a pre-op MRI in the late afternoon on June 5th. That will be rough since Jude won’t get to eat or drink all day on the 5th. But, it’s just one of many things rough that will be coming his way.
We learned today that the technician who does the functional MRIs is hesitant to agree to do one on a 5 year old. The oncologist and neurosurgeon who reviewed Jude’s neuropsychological testing are trying to convince her that with Jude’s super high IQ, that he is more like an 8 year old in the body of a 5 year old.  Given his fear of IVs, I think there is certainly a reason for her hesitancy. But, given the stakes, I don’t understand why the functional MRI wouldn’t at least be attempted.
Jude had his vision and hearing checked this morning and everything is looking good there.
Tomorrow we are bringing him to an ENT specialist to look at him for frequent nose bleeds. They may be able to treat him on the spot in a painless manner. We figured since we’ll be satisfying our $12,000 family out-of-pocket maximum this year, we might as well get this done.
This all doesn’t seem to real to me. Maybe after they shave a large stripe through his hair then this will all seem more real. But, it’s good that it’s not feeling that real yet since I still need to focus on other things, like earning my paycheck.