Today Jude had a physical therapy evaluation (to get a baseline on gross motor skills in case we do radiation). It turns out that his gross motor skills are well above average for his age so radiation shouldn’t be a concern to those skills. He can’t really skip, but admittedly, I’ve never taught him how.
Afterwards, we went to the lab to get Jude’s blood drawn for a anti-seizure medicine level check. Poor Jude gets more pokes than any kid should ever get and he sure hates them. He told the nice lab technician that she was the “meanest doctor ever.”
On another front, our oncologist at Children’s responded to my courtesy email telling her we were going to get a fresh set of eyes at Mayo look at Jude’s case. She was very nice and said that was a good idea and that no one knows whether we should do radiation now or wait and see, but she wants us to feel comfortable with whatever decision we make. It turns out tomorrow is ependymoma day at the international pediatric brain tumor conference that she is at so she’s going to be thinking of Jude and seeing what others are doing internationally in similar cases (if there are any).